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Adult son hugging his mother, both smiling

Grieving the Death of an Adult Child

By Grief/Loss

Losing a child – at any age – is a devastating experience for parents. It feels unnatural and “out of order” for a child to die first, and no one feels this strain more than the parents themselves. While this feeling is universal for all parents, those who are grieving the loss of an adult child face some unique challenges. Let’s look at a few of these challenges before reviewing key tips for processing grief.

senior woman hugging her elderly mother

Challenges Parents Face When an Adult Child Dies

Below, we will discuss 4 of the most common challenges you may face as you grieve the loss of your adult child. If you are experiencing something else, that’s okay. Every family situation is different and will come with its own set of challenges and concerns.

Challenge #1 – Misunderstood Grief

Unfortunately, when grieving the death of an adult child, it’s not uncommon for parents to face disenfranchised grief. This means that other people – family, friends, co-workers, society in general – may not fully understand the pain you’re feeling and may not know what to say or how to deal with it. In general, society has an easier time understanding the grief that comes from the death of a young child, so when the person is an adult child, they are less sure about how to react.

For instance, a well-meaning friend may say, “At least you had 30, 40, 50 years with your child.” While this comment was intended to comfort, it unintentionally makes light of the depth of pain you feel at the death of your adult child. While disenfranchised grief does not occur in every instance, it is something to be aware of as it can add an extra level of challenge to the grief journey.

Challenge #2 – Feelings of Guilt

For many parents going through grief, guilt is a common emotion (and a normal one!). You may feel guilty for many reasons, including feeling that you:

  • Didn’t do enough to help, or you missed the signs (if the death was related to suicide, substance abuse, drunk driving, or another similar reason)
  • Are separate and isolated (if you live far away and couldn’t be as present)
  • Should have been able to protect your child (whether this is realistic or not)
  • Somehow contributed to what happened

You may find yourself reviewing the details of your child’s death over and over, wondering if you could have done something to change what happened. While this review process is normal and your mind’s way of coming to grips with reality, be kind to yourself. The more you practice negative self-talk, the longer and harder the journey toward healing will be.

Adult daughter and father having tea while sitting on the couch

Challenge #3 – Loss of Support

Every family has different dynamics, and for some parents, the death of an adult child means a loss of support – whether that’s emotional, physical, or even financial. This is particularly true for aging or disabled parents, who may lean more heavily on their adult children for everyday care and support.

If this is your situation, you may find that you are not only dealing with feelings of grief but are also facing instability and insecurity in other areas of life. If this happens to you, consider reaching out to friends and family who can help bring more physical and financial security to your life. That way, you have the foundation you need to work through the emotional aspects of your loss.

Challenge #4 – Isolation

As parents, you want to take care of your children and grandchildren. Because of this protective instinct, you may prioritize the grief of your child’s spouse or children over your own feelings of loss. While it’s admirable to offer comfort and support – and you should – try not to neglect your own needs. You’ve lost a child, and your feelings are just as valid and legitimate. Be open about your needs. Don’t suppress what you feel. If you do, you may unintentionally isolate yourself and open the door to deeper feelings of sadness or depression. Care for yourself even as you take care of others.

Mother and son smiling together

Tips for Healing After Loss

Now that you are familiar with some of the most common challenges that grieving parents face, you can be on the lookout for them. Next, let’s discuss a few suggestions for how you can move toward healing.

Give Yourself Time

Grief doesn’t come with a formula or a handbook. It’s a day-by-day journey, working through your thoughts and emotions with intentionality and purpose. It’s going to take time, and that’s normal and right. Don’t rush yourself. While you will never “get over” the loss you’ve gone through, you can learn how to move forward with meaning and purpose.

Participate in Healing Actions

One of the most effective tools for grieving is to participate in healing activities, like journaling, visiting special places, creating memorial keepsake items, writing a letter saying the things left unsaid, or whatever else makes sense to honor your child’s life. Each time you participate in a meaningful action, it will soothe your spirit and help you work through the emotions building inside.

Adult son hugging his mother, both smiling

Let Others Help You

During times of grief, it’s common to self-isolate. While taking time to be alone is valuable and important to the grief journey, remember to also speak out what’s going on inside your heart and mind. Whether you talk with a friend, family member, therapist, or grief support group, it’s important to get things outside yourself. Not only is this practice essential to healing, it will help your friends and family understand where you’re at and how they can support and love you through the journey.

Take Care of Yourself

If you are like many people, you may be tempted to “stay busy” as a way of avoiding your grief. It feels like a good idea in the short term, but in the long run, this tactic won’t help you heal. That said, do the things that must be done but don’t be afraid to adjust your responsibilities for a time. This will ensure that you have time to take care of yourself – mentally, emotionally, and physically.

Father with adult son, laughing together

What’s Next?

Now that you are familiar with some challenges you may face and have learned several healing tips, it’s time to do the work of grief. Dr. Alan Wolfelt, a nationally recognized grief counselor and educator, puts it this way:

Someone you love has died. In your heart, you have come to know your deepest pain. From my own experiences with loss as well as those of the thousands of people I have counseled over the years, I have learned that we cannot go around the pain of our grief. Instead, we must learn to embrace and express it. This is hard but absolutely necessary work.

While it may be difficult right now to fathom a future where your pain lessens, it will come. And if healing feels disloyal or wrong, remember that healing doesn’t mean you forget. On the contrary, you will NEVER forget your child’s life and the joy they brought you. Healing is about honoring their memory in beautiful ways, about keeping their memory alive, and about embracing the joy of life for as long as you have it. Blessings to you on the journey.

Easter & the Search for Meaning After Loss

By Grief/Loss

Losing a loved one can be one of the most difficult things we experience in life. In fact, the word “bereavement” actually means to “be torn apart,” and how true that often is. Because the death of a loved one causes such distress, it affects our bodies, minds, and emotions.

During his years of walking alongside grieving families, nationally respected grief counselor and educator Dr. Alan Wolfelt has found that there are six needs of mourning. They are 1) acknowledging the reality of the death, 2) moving toward the pain of loss, 3) remembering the person who died, 4) developing a new self-identity, 5) searching for meaning, and 6) receiving ongoing support from others.

Based on his experience, Dr. Wolfelt has found that the people who take time to work through each one of these needs are on more solid footing throughout the grief journey. They are more likely to find healing and reconciliation after loss. This doesn’t mean they “get over” the loss; it simply means they learn how to incorporate it into their life story and begin to move forward.

But What Does This Have to Do with Easter?

One thing that Easter brings us face to face with is the search for meaning (Need #5). The search for meaning is all about asking the inevitable questions that come after the death of someone we know or love and how we should move forward afterward. For the sake of example, let’s imagine the disciples trying to make sense of Jesus’ death.

  • “Why did this happen?”
  • “What do we do now?”
  • “How do we move forward from here?”
  • “If he was the Son of God, how could he let this happen?”

They must have faced so many doubts, fears, and uncertainties. Not to mention the deep grief of losing a beloved brother, mentor, and friend.

It’s the same for us today when we lose someone we love. We are confronted with questions that feel unanswerable.

  • “Why now?”
  • “Why this way?”
  • “What happens after death?”
  • “Why does it hurt so much?”
  • “How has this changed me?”

Jesus’ Followers Search for Meaning

When Dr. Wolfelt speaks about the incredible importance of the search for meaning, he says:

To heal in grief, we must explore these types of questions if we are to become reconciled to our grief.  In fact, we must first ask these “why” questions to decide why we should go on living before we can ask ourselves how we will go on living. This does not mean we must find definitive answers, only that we need the opportunity to think (and feel) things through.

For followers of Jesus Christ all over the world, Easter answers the questions Jesus’ followers must have asked after his death. Jesus rose from the grave, conquered death, and made new life possible for those who believe he is who he says he is. For them, the search for meaning culminated in the most important event in Christian history.

Though many of their questions were answered and they found new joy and a mission for the future, the followers of Jesus still experienced loss.  While Jesus was no longer dead, he did ascend to heaven, leaving them with instructions to spread his message of love near and far.

While they did have answers to why his death occurred and what they needed to do now, the followers of Jesus still had to work through the grief of losing the physical presence of a beloved friend. On many days, they must have said, “If only Jesus were here, he’d know what to do.” We experience the same thing in our own personal grief journeys.

Your Personal Search for Meaning

The search for meaning is a personal experience. It’s normal for two people to come to different conclusions as they work to make sense of the death. Each person must come to grips with the reality of death and ask, “How does this person’s death affect how I live my life?”

For some people, a search for meaning may result in championing a new cause in a loved one’s honor. Writing a book to share a deeply painful but poignantly inspirational story. Pushing away fear and grabbing onto the courage to pursue dreams. Finding renewed purpose to make positive changes. Whether it’s a big change or a small one, a loved one’s death can be a catalyst to deeper and more meaningful living.

So, this Easter, if you are mourning the loss of someone you love, don’t be afraid to ask the tough questions. Just as Jesus’ followers had to re-evaluate their own lives in the wake of Jesus’ ascension and removal to heaven, we, too, must come to grips with what life looks like now that a loved one’s life has moved from one of presence to one of memory. In time, if you do the work of grief, you will find a way to move forward and come to a place of healing and reconciliation.

To learn more about Dr. Wolfelt’s 6 needs of mourning, take a moment to read his informative article, The Journey Through Grief: The Six Needs of Mourning.

Shows grieving man sitting on bed as he pinches his brow

Can Grief Make You Forget Things?

By Grief/Loss

Grief can have a profound impact on us – mentally, emotionally, physically, and psychologically. And as weird as it sounds, grief actually can make you forget things. Why is that? What’s going on, and how can you cope with the effects of brain fog brought on by grief?

Shows grieving man sitting on bed as he pinches his brow

What is Brain Fog?

If you’ve recently suffered the loss of a loved one, you may find that your brain isn’t quite as sharp as it usually is. You may experience memory loss, confusion, or an inability to concentrate. You might even feel a little worried about it. Have no fear – each of these experiences are normal reactions to grief.

Also called griever’s fog or trauma fog, brain fog is your brain’s response to a trauma you have experienced – the death of a loved one. While “trauma” feels like a heavy word, it’s appropriate. In big ways or small ways, your life has completely changed in an instant, and your brain hasn’t quite caught up to reality.

Brain fog looks different in different people, but here are a few examples of what you may experience:

  • Forget where you put things or what people told you
  • Miss appointments
  • Inability to remember if you’ve completed a task or eaten a meal
  • Feelings of restlessness, agitation, impatience, or confusion
  • Disorganized or unable to complete tasks
  • Fatigue and lack of initiative
  • Don’t enjoy the things you used to enjoy
  • Yearning for the person who has died

Shows a young woman wondering why she can't remember something

How Long Does Brain Fog Last?

The good news is that brain fog is most commonly temporary, but there’s no set or scientifically proven timeline. It varies from person to person. It may last just a few days, a few weeks, or possibly longer. For the vast majority of people, brain fog isn’t a long-term issue and will go away naturally.

However, for some, brain fog can become a symptom of complicated grief. When grief goes on for longer than normal and has a pronounced impact on a person’s quality of life, it may be related to complicated grief. For those dealing with this form of grief, the death becomes center stage in life and it’s impossible to resume normal life. The person seems stuck in a state of intense mourning.

If your brain fog seems to be getting worse or you are concerned about the onset of complicated grief, talk to your doctor about your concerns so you can start receiving the treatment you need to heal.

Why Does Brain Fog Happen?

The death of a loved one is a form of trauma, and your mind and body realize that. Your body releases stress hormones, and soon, those hormones begin to affect your sleep, immune system, and mood. In short, your body and mind are overwhelmed. Brain fog is your body’s natural response to so many heightened emotions and hormones. In a way, it’s a form of natural protection, dulling your senses while you work to process through what has happened. Once you’ve had time to process and grieve, your body slowly releases its hold, and brain fog recedes.

Many common reactions to loss – like shock, numbness, disorganization, confusion – are related to brain fog. But remember, brain fog is temporary, and as you begin to process your grief, you will see it decrease over time.

Shows woman sitting on couch worrying

How Do I Help Myself Through Brain Fog?

The best thing you can do is actively engage with your feelings of grief. Dr. Alan Wolfelt, a nationally respected grief counselor and educator who has walked alongside many people on the grief journey, says that the best way to do the work of grief is to open yourself to its presence and honor the pain you feel:

In many ways, and as strange as it may seem, what you need to do when you are grieving is to honor your pain. Honoring means recognizing the value of and respecting. It is not instinctive to see grief and the need to openly mourn as something to honor; yet the capacity to love requires the necessity to mourn. To honor your grief is not self-destructive or harmful, it is self-sustaining and life-giving!

To help you on your grief journey, check out these helpful resources:

Give Yourself Permission to Grieve

Grief & the Six Needs of Mourning

10 Helpful Tips When Grieving a Loss

10 Myths About Grieving You May Believe

Shows person using calendar and to-do list to remember things

It will take time to work through your loss and come to grips with what life looks like now. For the now, here are some practical ways you can help yourself through brain fog.

  • Keep a calendar
  • Set alerts/alarms
  • Make to-do lists
  • Focus on getting enough sleep
  • Reduce alcohol consumption
  • Do things when you think of them; don’t put them off
  • Give yourself regular breaks

Click here for even more tips and suggestions for dealing with brain fog.

Remember…You’re Not Crazy

No matter how long you deal with brain fog, remember that you aren’t crazy. You’re grieving. Your mind and body are still processing, and as disconcerting as it can be, it’s normal. Be patient with yourself. Do the work of grief. While life is going to look different moving forward, you can do this.

5 Self-Care Tips When You’re Grieving on Valentine’s Day

By Grief/Loss

If you are grieving the loss of someone you love this Valentine’s Day, you may be tempted to push your feelings to the side and pretend that you’re just fine. Instead of doing that, why not take a little time to acknowledge your feelings and then do something kind for yourself? Grief is hard work, and Valentine’s Day can be about showing yourself a little love, too.

Here are a few self-care ideas to get you through Valentine’s Day (and may even make your day!).

Shows three women eating dinner together and having fun

1. Spend Time with Friends

Rather than sitting at home alone, make plans to fill your day with fun activities with friends. Whether that means grabbing dinner, seeing a movie, or inviting people over to chow down on your favorite snacks and watch movies, you can create a relaxing evening filled with laughter and joy. You may still have moments of sadness when you miss your loved one, and that’s okay. Your friends will be right there to love and support you through it.

2. Give Yourself a Gift

Who says you can’t give yourself a gift on Valentine’s Day? It doesn’t even have to be chocolate. Be kind to yourself and give yourself something you truly want. It takes time and intentionality to work through your grief, and you will need moments of joy to help you through. Whether you want books or craft supplies, dinner at a new restaurant you’ve been eyeing, a spa day, or 18 holes at the golf course, make this Valentine’s Day one of the good days by treating yourself right!

Shows a cell phone sitting in a basket away from people to illustrate taking a break from social media

3. Take a Social Media Break

Social media can be disheartening and exhausting on a regular day. When you’re grieving on Valentine’s Day, seeing all the happy posts may not be what you need. Instead, take a break from social media to focus on real life. Talk with friends, read a good book, go out to your favorite local joint – basically, focus on making your own memories and creating an evening of positivity (not comparison).

4. Practice Gratitude

When you’re in the middle of the journey, it can be easy to get caught up in your own grief. Especially on special days – when you may feel out of sorts or down – it’s easy to sink into the mentality that there’s nothing going right in your life. By taking a few minutes to write down what you’re grateful for, you can re-center your eyes on the positives in your life. Another great way to help you focus outward (and not get caught in the spiral of inward focus) is volunteering. Choose an organization you’re passionate about and give your time and compassion to others.

Shows man participating in a relaxing activity like bowling

5. Do Something that Helps You De-stress

During the grief journey, emotions can run high, and Valentine’s Day may be a trigger for you, especially if you’ve lost a significant other. To help you balance your sad feelings with positive experiences, consider doing something that will help you de-stress. This will differ from person to person – exercise, reading, crafting, golfing, movie watching, spending time with friends or family – but find something that will bring happiness to your heart even as you process through your grief.

If none of these suggestions appeal to you, that’s fine. Choose something that makes sense for your personality and lifestyle. The point is…take care of yourself this Valentine’s Day.

Grief takes time, and in some ways you will never “get over” your grief. Instead, you’ll learn how to live with it and make it part of your story. By intentionally adding positivity to your Valentine’s Day, you take much-needed steps toward normalcy as you move forward on the journey toward healing and reconciliation.

Focus on a pair of hands, one pair holding the other in a comforting way

Practicing Remembrance & Gratitude During Times of Grief

By Grief/Loss

Grief can rear its head at any moment – at the dinner table, at a holiday family gathering, at the grocery store, or at a child’s piano recital. And this is okay. It’s normal and natural to experience intense bursts of deep emotion during the most ordinary of moments after a loss. But did you know that practicing remembrance and gratitude can help you work through your grief and find your way toward healing?

The Power of Remembrance & Gratitude

As human beings, our memories play a big role in the way we experience life. All you have to do is talk to the family member of a dementia patient to understand that memory is both a powerful and beautiful gift. It’s one that we often don’t appreciate until it’s threatened.

During times of grief, our memories help us process loss. Remembrance allows us to recall and reflect on favorite memories and reminisce about a loved one’s many quirks and beauties. Then, when remembrance is paired with gratitude, we look beyond the pain of now and dwell on the good things in life – both the cherished moments of yesterday and the coming memories of tomorrow. Together, remembrance and gratitude help us heal.

Focus on a pair of hands, one pair holding the other in a comforting way

Nationally recognized grief counselor and educator Dr. Alan Wolfelt puts it this way:

The truth, paradoxically, is that in grief, we have to go backward before we can go forward. 

In my experience, remembering the past is the very thing that eventually makes hoping for the future possible. Mourners’ lives will open to renewed hope, love, and joy only to the extent that they first embrace the past. Those who fail to go backward before marching forward after a loss often find themselves stuck in the morass of carried grief.

The loss created by death is the loss of the physical presence of the person who died. In the physical plane, their relationship with the person has ended, and so they grieve. But on the emotional and spiritual planes, their relationship with the person who died continues because they will always have a relationship of memory.

Precious memories, dreams reflecting the significance of the relationship, and objects that link them to the person who died are examples of some of the things that give testimony to a different form of continued relationship.

Woman sitting at table as she writes in a personal notebook

Simple Ways to Practice Remembrance and Gratitude

When practicing remembrance and gratitude, the most important thing is to take your time. Depending on your personality, you may want to spend time journaling or drawing, engaging in physical activity, watching your loved one’s favorite movie, cranking up favorite music, or talking with a close friend who’s prepared to listen.

How you choose to engage with your memories and honor your loved one’s life is less important than actually doing it. Each time, you may do the same thing, or you may do something different. Both options are completely fine.

Here are a few ideas to help you honor and remember a loved one’s life as you practice gratitude:

  • Set a plate out for them at family gatherings
  • Mark their birthday in a special way
  • Host a dinner in their honor and ask guests to share stories
  • Volunteer with organizations that champion your loved one’s passions
  • Keep a journal of memories and thoughts
  • Set up a permanent memorial and visit regularly
  • Create a memorial keepsake (video, photobook, memory box, etc.)

Man in light blue shirt relaxing on the floor and listening to music with headphones

Don’t Rush the Process

You will have multiple opportunities each day to practice remembrance and gratitude. As memories surface – triggered by sights, smells, events – take a moment to engage with the memory and then move toward gratitude.

For example, when washing your whites, you might remember a time when your loved one accidentally threw a red sock into the load of whites, and it turned the entire load pink. In that moment, smile at the memory and let it sit in your mind. Then, take a moment to reflect: “At first, I was so mad, but then we laughed about it. I’m so grateful we had moments like that. I miss you.” And then, take a deep, cleansing breath and continue with your laundry.

It will take practice. At first, the memories may be strong and feel like too much. That’s okay. Over time, the intensity will decrease, and you will be able to engage more easily. After all, grief is a journey, and the ultimate goal isn’t to stop missing the person you love. The goal is to find a way to move forward with hope, healing, and peace with beloved memories by your side.

Mature man sitting on couch at home as he thinks

What If I Don’t Miss the Person Who Has Died?

It would be remiss not to acknowledge that people are messy, complicated, and can be difficult – some more than others. If the person who has died was a difficult person in your life, it’s alright to breathe a sigh of relief – this is a completely normal reaction. After that, it’s time to get to work.

Even if you don’t miss the person who has died, you need to work through your feelings for your own well-being. This may mean processing through anger, disappointment, hurt, and painful memories. The work will be difficult (and you may need a professional therapist to help you through the process), but those who never deal with the pain and wrongdoing done to them often end up hurting, broken, and sometimes angry, people. In some cases, they themselves become the “difficult person” in someone else’s life, and the cycle continues.

While moments of gratitude may be few and far between with a difficult person, remembrance will help you unpack any deep emotional baggage. After all the trauma you experienced, its effects won’t end simply because the person who inflicted them has died. We must still learn how to reconcile with our past and move forward toward the future in a healthy way.

Mom and daughter looking through a photobook as they remember a loved one

Get Started Today

Now that you understand the power of remembrance and gratitude and how together they can greatly impact your grief journey, it’s time to get started. Pull out the family photos. Watch videos that feature your loved one. Remember the moments – both the good and the bad. Practice writing down or saying out loud what you are most grateful for with each memory. Find ways to honor your loved one’s life in creative ways.

As you participate in these healing actions, your heart will fill with warmth and love. In time, the sting will lessen. And while you will always miss the physical presence of the person you love, you will remember them with great fondness and celebrate their life, legacy, and lasting impact.

9/11: A Day to Remember Together

By Current Events, Grief/Loss

The events of September 11, 2001, are forever ingrained in the memories of Americans (and people around the world) who were old enough to remember the day. Who could forget the terrifying videos and images paired with the stories of heroic courage coming out of New York, Pennsylvania, and the Pentagon that infamous day? And it’s to our credit that we don’t forget. We should never forget but always remember the lives lost on 9/11.

Why is it so important to remember?

Dr. Alan Wolfelt, nationally recognized grief counselor and educator, has found that remembrance is an important part of grieving. We can’t move forward (healing) until we look back (remembrance). In his own words, he says:

I encourage you to take grief’s hand and let it lead you through the darkness and toward the light. You may not see the light at first, but forge ahead with courage, and with the faith that the light of hope and happiness does exist. Feel your pain, sorrow, sadness, disbelief, agony, heartbreak, fear, anxiety, and loneliness as much as you can.

This may seem odd, as these emotions could well be the ones you most want to avoid. You might fall into the common thinking of our society that denying these feelings will make them go away. You might have the urge to “keep your chin up” and stay busy and wait to “get over” your grief. Yet, ironically, the only way to help these hard feelings pass is to wade in the muck of them. To get in and get dirty. Grief isn’t clean, tidy, or convenient. Yet feeling it and expressing it is the only way to feel whole, once again.

In other words, in order to heal, we must grieve. In order to grieve, we must remember. As we remember, we must find the courage to face the feelings deep within us.

How does the act of remembrance help us as communities and a nation?

1. Remembrance creates an opportunity to share life stories

In so many ways, telling a life story is an essential part of healing. As we learn more about the individual stories of those who perished on 9/11, we are forced to confront the pain and suffering of that day. Even more than that, we see each victim as a person worthy of value. A person deeply loved by others, many of whom are still living. A person whose life was cut short but whose memory lives forever.

By telling the stories of the airline passengers, the firefighters, the bankers, the receptionists, the military personnel, the bystanders, and so many more, we grapple with the national and personal grief we feel and honor the lives of those lost to horrifying events.

2. Remembrance strengthens community bonds

In remembering and grieving together as a nation, we strengthen the bonds in our community. Ask a person born before 1994 where they were when the Twin Towers fell, and they can likely give you a detailed description of exactly where they were and what they were doing when they heard the news.

Every American was touched by the events of 9/11 in some way. As we mark this day, even so many years later, it’s a chance to remember together, to mourn together, and to connect to each other in a profound way. If possible, consider attending a 9/11 remembrance event in your area where you can connect with your community while honoring the lives of those lost.

3. Remembrance re-connects us to our past

We’ve all seen how details can be forgotten or overlooked with the passage of time, even in our own memories. By taking time to intentionally remember, we can connect with the past. We can learn from what has already happened. We can pave the way toward a better future.

Conversations about a painful event are not something to be feared. Healing doesn’t come from blocking out what has happened but from acknowledging it and facing it. By intentionally remembering the events of 9/11 and the lives of those who died, we participate in a healing action – a ritual – that will not only bring hope and healing but will ensure that lives were not lost in vain.

Never Forget

This year, as we remember September 11th, let’s reflect on what matters most in life. That’s exactly what a group of students in a New York classroom did one year after 9/11. This is what they had to say:

We were eight.

Before September 11th, we would wake up with a list of “Don’t Forgets”

Don’t forget to wash your face
Don’t forget to brush your teeth
Don’t forget to do your homework
Don’t forget to wear your jacket
Don’t forget to clean your room
Don’t forget to take a bath

After September 11th, we wake up with a list of “Remembers”

Remember to greet the sun each morning
Remember to enjoy every meal
Remember to thank your parents for their hard work
Remember to honor those who keep you safe
Remember to value each person you meet
Remember to respect others’ beliefs

Now we are nine.

So, let us remember. Let us be unified. Let us never forget and be the better for it.

Two people holding hands in a comforting way

Caring for Yourself Emotionally and Physically When Someone You Love is Dying

By Grief/Loss, Hospice

If you have a friend or loved one who is dying, you’re likely dealing with a lot of feelings right now: sadness, shock, disbelief, anger, anxiety. It’s normal to experience these emotions, and you have every right to feel the way you do. As you juggle your own grief with the need to be there, physically and emotionally, for your friend or loved one, prioritize caring for yourself and realize that you can’t do it all on your own. Below, we will discuss 6 recommendations that will help you tend to yourself and stay emotionally stable as you care for your friend or loved one in their final days.

1. Share Your Feelings

Someone you care deeply about is dying and will soon be gone. Odds are, you will also need support as you explore your own feelings about this illness and the changes you see in your friend or loved one. Find someone who will listen to you without judgment as you talk out your own feelings. To stay available to your loved one, you need to be able to work through your own feelings. Do this with someone you trust.

group of four sitting together, sharing and talking

Additionally, many hospices, churches, and community groups offer support groups for friends and family of the dying—both before and after the death itself. Take advantage of these compassionate resources.

2. Care for Your Body

Visiting or caring for a terminally ill person will zap a lot of your energy – both mental and physical. To make the most of the time you have left with your loved one, you need to make sure you aren’t running yourself ragged. Make sure to eat nutritious meals. Get plenty of rest. Continue to exercise. Spend time doing things that make you happy. Take a break from the sick room.

Colorful plate of healthy foods like broccoli, carrots, chicken, tomatoes, brown rice

If you’re a primary caregiver, it may feel counter-intuitive or just plain wrong to prioritize caring for yourself, to take time away, or to enjoy simple activities, but you will need these times to help you stay afloat. No one can sustain continuous stress, anxiety, and sadness without starting to crack. Adding a few caring habits to your life will help you keep it together and have the energy you need to be fully present with your loved one.

3. Realize Your Own Limitations

It’s important to realize that not everyone can offer ongoing support to someone who is dying. If you feel you simply can’t cope with the situation, try to understand your reticence and learn from it. Ask yourself, “Why am I so uncomfortable with this?” and “What can I do to become more open and compassionate in times of need?”

Do not, however, avoid your friend or loved one altogether. Phone rather than visit. Write a letter or email if you can’t bring yourself to phone. Let them know that this situation is difficult for you while at the same time acknowledging that your loved one’s fears and needs come first.

On the other end of the helping spectrum, don’t become obsessed with the illness or feel that you must be your loved one’s only means of support. Do not emotionally overburden yourself.

4. Establish a Routine

After a terminal diagnosis, everything may feel out of control. Your routine is upset. You are suddenly dealing with events, people, and emotions you didn’t expect. Your life has lost its normalcy and has been thrown into disarray. By establishing a routine, you can begin to gain back some of the normalcy and control you lost. When you feel comfortable in your routine, you can begin to process what’s happened and learn how to deal with and manage your feelings.

Woman writing on a calendar, outlining her routine for the week

Additionally, establishing a routine will help your dying friend or loved one. They also need structure to rely on, as their life has been thrown into just as much, if not more, disarray than yours. If you are a close caregiver, establish a routine together. If you are more on the periphery, make sure to communicate your wish to visit on a regular visit and find a time that works best for both of you.

5. Embrace Your Own Spirituality

If faith is part of your life, express it in ways that seem appropriate to you during this difficult time. Pray with your friend or loved one and with their family. Allow yourself to be around people who understand and support your religious beliefs. Read spiritual verses or poems. Sing songs. Find the comfort that your faith can bring to the hard seasons of life.

Woman sitting in church pew

If you are angry at God because of your loved one’s illness, that’s okay. Find someone to talk with who won’t be critical of whatever thoughts and feelings you need to explore. It’s normal to have questions or doubts when faced with death, but as you embrace your own spirituality, you will find the answers you need.

6. Seek Hope and Healing

As much as you may not want to face it, in time, your friend or loved one will die. To love and live wholly again, you must find a way to mourn. In fact, you cannot heal unless you openly express your grief. Denying your grief, before and after the death, will only make it more confusing and overwhelming. As painful as it may be, you must embrace your grief in order to begin to heal.

Dr. Alan Wolfelt, a nationally recognized grief counselor and author, puts it this way: “You might fall into the common thinking of our society that denying these feelings will make them go away. You might have the urge to ‘keep your chin up’ and stay busy and wait to ‘get over’ your grief. Yet, ironically, the only way to help these hard feelings pass is to wade in the muck of them. To get in and get dirty. Grief isn’t clean, tidy, or convenient. Yet feeling it and expressing it is the only way to feel whole, once again.”

Two people holding hands in a comforting way

Reconciling your grief will not happen quickly. Remember, grief is a process, not an event. Be caring and patient with yourself. Never forget that the death of someone loved changes your life forever.

With these 6 tips in mind, start choosing the best ways to maintain your own self-health while supporting your dying friend or loved one. More than likely, you will still be tired and emotionally worn. However, these caring recommendations can help prevent you from reaching burnout as you journey alongside someone you love during their final days.

*Based heavily on a brochure by Dr. Alan Wolfelt, a respected author and educator on the topic of healing in grief. He serves as Director of the Center for Loss and Life Transition and is on the faculty at the University of Colorado Medical School’s Department of Family Medicine. Visit www.centerforloss.com to learn more about helping children in grief. Published with permission.

Focus on hands, younger person holding older person's hand in a comforting way

Grief & Self-Care After a Loved One’s Alzheimer’s Diagnosis

By Grief/Loss

You’ve received the news that someone you love has been diagnosed with Alzheimer’s disease or dementiaYou may feel numb, in shock, or unable to process what’s happening. Or, you may have seen the signs, and it’s a relief to finally have a medical diagnosis. Whichever is the case, you probably did not expect things to turn out this way. Feelings of grief and loss are filling you as you look forward to a future forever altered. As you grapple with the grief that an Alzheimer’s or dementia diagnosis brings, we hope that these words will bring you hope and understanding for the journey ahead.  

Remember that You Are Not Alone

Navigating the treacherous and emotional journey of helping someone you love live with Alzheimer’s is not easy, but it does not mean that all is lost. By focusing on the abilities your loved one retains, you may still be able to have a meaningful relationship and share joy and love. And by fully mourning and making the most of your own days, you will be living your life “on purpose,” with meaning each and every day. 

Father with two adult sons laughing and enjoying time together

And even though you may feel alone on your journey, you aren’t. More than 6 million Americans are currently affected by Alzheimer’s. To care for them, more than 11 million U.S. family members and friends provide unpaid care. Their love, time, and attention help keep those affected by Alzheimer’s safe and their lives meaningful.  

Whether you are a direct caregiver, or you are a family member or friend without daily caregiving responsibilities, there are so many resources available. Read books or listen to audiobooks. Research online. Talk to your loved one’s doctor. Attend a support group. Grow a support network of friends and family who are willing to share the responsibility of caring for a loved one with Alzheimer’s. There’s so much out there to help if you take the time to look and engage.  

You Will Experience Grief

Alzheimer’s is going to take so much from your loved one, but the losses you will experience as a caregiver, friend, or family member are also significant. You may lose the close personal relationship you had with the person you love. Your ability to do and enjoy the same things together is lost. Even the basis of the relationship may change. In many cases, children and spouses have to act more like parentsIn so many ways, once that diagnosis is spoken, your expected future alters completely.  

Focus on hands, younger person holding older person's hand in a comforting way

If you’re feeling sad or depressed, don’t beat yourself up for how you’re feeling. With so much change, it’s natural to feel grief and sadness  

Recognize Your Own Symptoms of Grief

As you mourn, your grief may feel complicatedIn some sense you need to mourn a person who is physically present but who is becoming more and more cognitively, emotionally, socially, and spiritually absent every day. Society, your friends, and even some of your family members may not understand. Listen to your spirit and your own feelings and slow down to feel your inner pain. Only by facing the pain head-on will you be able to deal with it in a healthy way. 

As you come to grips with what you’re feeling, keep your eyes open for these common symptoms of grief:  

  • denial of the diagnosis or that the person you love is ill 
  • periods of helplessness, despair, and depression 
  • changes in appetite or sleeping patterns 
  • feelings of anger or frustration toward the person with Alzheimer’s 
  • withdrawal from social activities, friends, family, aneven the person with Alzheimer’s 
  • feelings of anxiety or confusion 

Woman sitting at table, writing on notepad

Don’t Avoid Your Grief

Generally, we’ve been taught to avoid emotional pain. However, it’s only by embracing our pain and grief that we can heal our wounds. 

Be wary if others are telling you how well you are doing with your “situation” or if you are not feeling much at all. Sometimes doing well means you are avoiding your pain, hiding your emotions, or experiencing some of the natural numbness that grief brings. 

Take time to care for yourself, keep tabs on your emotions, and make time to actively mourn and express your internal feelings.  

Be Kind to Yourself

You are going through a lot and you deserve kindness— from others but also from yourself. Let go of any self-doubt you may feel. You are doing the best you can. Remember to eat nutritiously, get enough sleep, exercise regularly, and do things that help you relax and be at peace.  

Mother and adult daughter sitting on couch together, talking and lighthearted

Also, take time to celebrate, even the small successes. If you are the primary caregiver, say “Good job!” to yourself when you successfully get your loved one dressed with no emotional outbursts. If you are a friend or family member who does not have day-to-day caregiving responsibilities, feel good about the times when you’re able to offer your help and love. 

Ask for and Accept Help

While you may feel the need to shoulder everything on your own, you need and deserve ongoing love and support. Don’t expect yourself to do everything or to handle your grief alone. That’s too much for one person. You need to talk through what you’re experiencing with people you trust. You will also need help with chores at home, medical appointments, finances, and many other things. 

Ask your friends and family for their support and patience. Those who love and care for you truly want to help. Additionally, you can also phone the Alzheimer’s Disease Education and Referral Center at no charge (1-800-438-4380) or email them ([email protected]) 

Mature woman caring for her elderly father

Join Your Loved One

It can be tempting to write off people with an Alzheimer’s diagnosis. Instead, look your loved one in the eye, and talk to them directly. Join them where they are. Don’t get upset if your loved one makes mistakes (because they will). At times, your loved one will try hard to compensate for any cognitive losses. Join them in this effort. 

To allow your person to function as fully as possible, empower them and avoid limiting them. Encourage their involvement in support groups and consider joining one yourself. Talking to others can help you both navigate the maze of Alzheimer’s.  

Recognize that Respect and Love Endure

At times you may doubt, but remember, respect and love can endure throughout the progression of the disease. Alzheimer’s may take away a person’s memory, but it does not take away their soul. And even though your loved one may be confused and not even recognize you, at the heart, they still love you and appreciate the care you have given. 

Man and woman walking on a green path outside, arms around each other's waist

Do you believe that there is a soul that transcends the physical body? If you do, then you can find comfort in knowing that your loved one’s soul is eternal and the person you love lives on, unharmed by the disease. And that is where their love for you lives, too. 

Caring for a loved one with an Alzheimer’s  diagnosis is going to stretch you in ways you never expected or wanted. Just remember, you can do this. Take it one day at a time, one moment at a time. Embrace the good and process through the bad. You’ve got this.  

*Content based on a brochure by Dr. Alan Wolfelt. 

Father holding daughter's hand as they walk outside

10 Ways to Emotionally Support a Dying Child (and Their Family)

By Children, Grief/Loss, Hospice

A child you care about is dying. You want to offer your love and care, but you’re not sure how to go about it. Whether you are a parent, friend, or caregiver, may this guide help you turn your care and concern into action.

When a Child is Dying

In our hearts, we all believe that children aren’t supposed to die. As much as we wish otherwise, the sad truth is that children do die. Confronting this difficult reality is the first step you can take toward helping a dying child. It’s going to take time, so for now, try to accept the reality of the child’s medical condition, if only with your head. You will later come to accept it with your heart.

Little boy in bed checking his teddy bear's heartbeat with a stethoscope

As you navigate through a heartbreaking situation, may these 10 insights serve as a guide to loving a child (and their family) through one of life’s most difficult times…the loss of a child.

1. Don’t Underestimate the Child’s Capacity to Understand

Children have the capacity to understand more than we give them credit for. Like adults, they deserve our respect and compassion—and our honesty. Sometimes adults, in an effort to protect themselves, assume that children are incapable of understanding or should be protected from the truth. These adults often don’t talk directly to dying children about their prognoses, which can leave the children feeling alone and isolated.

Children can cope with what they know. They can’t cope with what they don’t know. Dying children deserve an atmosphere that creates open, two-way communication. Many terminally ill children will go back and forth between wanting to know details about their illness and not wanting to acknowledge they are even sick. It is critical to follow the child’s lead. Always listen first as you participate in open dialogue about any feelings, concerns, or questions they might have. If they ask something and you don’t know the answer, simply say, “I don’t know.”

Child sitting on bed with mother kneeling and talking in a loving way

2. Be Honest with the Child About Their Coming Death

As the child comes to comprehend their illness and its severity, explain to them that they will likely die, making sure to use language they will understand. The conversation may be the hardest thing you have ever done, but honest love is what a dying child needs most.

Depending on their age and developmental maturity, they may not immediately (or ever) fully understand what their illness means. But they will begin to incorporate the notion of death into their remaining life and will have the opportunity to think about it and ask questions. They will also have the privilege of saying goodbye.

Do not try to protect the child by lying about their condition. If a dying child is told they are going to get better but everyone around is acting down and defeated, they will notice. This may make the child feel confused, frustrated, and perhaps angry.

Instead, show your love and respect by being honest and open with them and helping them understand that they are dying.

Father holding daughter's hand as they walk outside

3. Encourage Open Communication, But Do Not Force It

As caring adults, we should encourage honest communication between the child, caregivers, family, and friends. However, we should never force it. Children will naturally “dose” themselves as they encounter the reality of the illness in their life. In other words, they will accept the reality of their circumstances in small doses over time. They aren’t able to take all the information in at once, nor will they want to.

Answer only what the child asks. Don’t overrespond out of your own anxiety. Remember—children will determine with whom they want to share their pain. Often, a child wants to protect their parents or other close adults and will adopt a “chin up” attitude around them. This is a normal response and should be respected.

4. Watch for the Child’s Indirect Communication

Children, particularly seriously ill children, are not always direct about their thoughts and feelings. They may make statements, display behaviors, or ask questions that indirectly suggest their understanding or awareness of the situation. These cues reflect underlying needs and deserve loving responses. Pay special attention to the child’s non-verbal means of trying to communicate any needs or concerns.

Mother kissing son's forehead at sunset

5. Tune In to the Dying Child’s Emotions

Aside from the considerable physical toll terminal illness can take, dying also affects a child’s head, heart, and spirit.

While you shouldn’t guess at or make assumptions about a child’s feelings, do be aware that they may experience a variety of emotions. Fear, anxiety, anger, sadness, and loneliness are just a few of the emotions they may feel—one at a time or simultaneously.

These feelings are a natural response to serious illness. Don’t try to help the child “get over” these feelings; simply enter into their feelings and validate them.

6. Help the Dying Child Live to the Fullest

Terminal illness presents human beings with an exceedingly difficult and contradictory challenge: you are dying, you know you are dying, yet it is your nature to want to live. Dying children often feel this tension, too. If the adults around them have been honest, they understand that they will soon die, but they still want to live and laugh and play as often as they can.

Help the dying child live happily. Do what is in your power to make them comfortable. Create special, memorable moments. Don’t completely abandon your normal routine (this may make the child feel out-of-control and unprotected) but do work to make each remaining day count. Above all, spend time with them. Make sure that the people who mean the most are around as often as possible.

Four children of different ethnic backgrounds smiling while playing outside

Peer relationships are very important to children, and the illness will likely create some social and physical barriers to these friendships. When possible, nurture the child’s friendships when possible. Arrange a special party. Make play dates with one or two best friends. Help two children write letters back and forth when personal contact isn’t possible.

7. Take Advantage of Resources for the Dying

Local hospices are well-staffed and trained to help both a dying child and their family. The hospice’s mission is to help the dying die with comfort, dignity, and love, and to help survivors cope both before and after the death. Other organizations, like the Make-A-Wish Foundation, help dying children find joy in their remaining lives.

8. Support Parents and Other Important Adults in the Child’s Life

A child’s terminal illness naturally impacts everyone who loves the child. Not only should you be supportive of the child, you should also be available to support and nurture other family members and close friends through the grief and stress of the situation. The adult’s response to the illness will influence the child’s response. So, in supporting adults, you are supporting the child.

Perhaps you can be a caring companion to the family and help in practical ways. Offer to provide food for the family, wash clothes, or clean the house. Listen when they need to talk. Sit with the ill child to give parents a break. Offer to babysit the other children in the family. While words may be inadequate, your supportive behavior will be remembered forever.

Holding a friend's hand in a comforting way

9. Don’t Forget Siblings

Don’t forget the impact a dying child’s illness is having on their siblings. Because so much time and attention are focused on the dying child, his brothers and sisters may feel emotionally abandoned. Go out of your way to ensure their needs are also being met.

10. Embrace Your Spirituality

If faith is part of your life, express it in ways that seem appropriate to you. During this difficult time, you may find comfort and hope in reading spiritual texts, attending religious services, or praying. Allow yourself to be around people who understand and support your religious beliefs.

A Final Word

All children, terminally ill or not, have the right to be nurtured, to be children, and to make choices that impact their lives. There is nothing more difficult for families than confronting the death of a child. As caring adults, we have a responsibility to maximize the quality of life for the child, the family, and friends. May these 10 insights help you lovingly care for each person affected by the death of a child.

*Based heavily on a brochure by Dr. Alan Wolfelt called Helping a Child Who is Dying. Dr. Alan Wolfelt is a respected author and educator on the topic of healing in grief. He serves as Director of the Center for Loss and Life Transition and is on the faculty at the University of Colorado Medical School’s Department of Family Medicine. Visit www.centerforloss.com to learn more about helping children in grief. Published with permission.

Two people holding hands across table, no faces

How to Support a Dying Friend in their Final Days

By Grief/Loss

If you’re reading this, you have a friend who is dying, and you’re probably dealing with a lot of feelings. Facing the death of someone you care about is extremely difficult for everyone involved, but hopefully, these words will guide you toward knowing how you can help and support your friend with loving actions during their final days.

Two people holding hands across table, no faces

When a Friend is Dying

First, it’s important to confront the difficult reality that someone you care deeply about is dying. It may take time to accept the fact of your friend’s impending death. In some cases, it may not be until after death has occurred that you fully and finally acknowledge the reality. This is normal.

If you just aren’t ready (or able) to accept your friend’s coming death just yet, that’s okay. Instead, try to come to grips with the reality of their medical condition, if only with your head. You will later come to accept it with your heart.

Now, let’s talk about six ways you can emotionally support your friend and make their final days precious and meaningful.

1. Give the Gift of Presence

Perhaps the greatest gift you can give your dying friend is the gift of your presence. Particularly if you live nearby, you have the opportunity to demonstrate your support by being there, literally, when your friend needs you most. Visit your friend at the hospital or at home—not just once, but throughout the remainder of their days. Rent a movie and bring popcorn. Play cards or board games. Sit together and watch the snow or rain fall. Your simple presence will say to your friend, “I am willing to walk this difficult road with you and face with you whatever comes.”

Remember to respect your friend’s need for alone time, though, and realize that their deteriorating physical condition may leave them with little energy. Give your friend time alone when they need it.

Downward angle, mom and adult daughter siting on couch, talking

2. Be a Good Listener

Your friend may want to openly discuss their illness and impending death, or they may avoid discussing it entirely. The key is to follow your friend’s lead. Keep in mind that your friend will experience this illness in their own unique way. No two journeys are the same.

Allow your friend to talk about their illness at their own pace. And while you can be a “safe harbor” for your friend to explain their thoughts and feelings, don’t force the situation if they resist. Give them space and time to think and feel what they need to think and feel.

If you listen well, you can help your friend cope during this difficult time. Both your physical presence and your desire to listen without judging are critical helping tools. Don’t worry so much about what you will say. Just concentrate on listening to the words your friend is sharing with you.

3. Learn About Your Friend’s Illness

It’s said that “People can cope with what they know, but they cannot cope with what they don’t know.” You will be better equipped to help your friend if you take it upon yourself to learn about their illness. Consult medical reference books at your local library. Request information from educational associations, such as the National Cancer Institute or the American Heart Association. With your friend’s consent, you might also talk to their physician.

If you educate yourself about the illness and its probable course, you will be a more understanding listener and can prepare yourself for the reality of the illness’s later stages.

friend putting a comforting hand on a woman's shoulder

4. Be Compassionate

As you spend time with your friend, give them permission to express their feelings about the illness without fear of criticism. After all, everyone needs time to vent or express what’s on the inside. But again, let your friend take the lead. Learn from your friend; don’t instruct or set expectations about how they should respond. Think of yourself as someone who “walks with” the dying person, not “behind” or “in front of” them.

Never say, “I know just how you feel.” You don’t. Comments like, “This is God’s will” or “Just be happy you have had a good life” are not constructive. Instead, these kinds of comments are often hurtful and may make your friend’s experience with terminal illness more difficult. If you feel the need to console your friend, simply remind them how loved they are.

5. Offer Practical Help

While your friend may have family around to help, there are many ways you can still assist with the activities of daily living. Preparing food, washing clothes, cleaning the house, watching the kids, or driving your friend to and from the hospital for treatment are just a few of the practical ways of showing you care. Make sure to coordinate with family members so that there’s no added stress from miscommunication.

Father and young son washing a carrot as they prepare a meal

6. Stay in Touch

If you are unable to visit your sick friend due to distance or other circumstances, write a note or make a call or send a gift or make a video. What should you say? Tell your friend how much they mean to you. Reminisce about some of the fun times you’ve shared. Promise you’ll write again soon—and then follow through on that promise. Avoid sending a generic greeting card unless you’ve personalized it with a heartfelt message.

Your friend is likely facing a lot of emotions as they journey toward death. Fear, shock, anger, sadness. No matter how they’re feeling, they need you, your love, and your friendship to make it through the coming days. Use these six actions to show your friend just how much you care and make memories that will be precious to you both.

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