Entering hospice care can feel overwhelming, especially if you’re unfamiliar with how it works. Though you may feel relieved that additional support is on the way, you may also feel a little sad, uncertain, or even a bit guilty. Don’t worry, these are completely normal reactions to introducing something new to your loved one’s routine and lifestyle.
As your loved one prepares for the transition to hospice care, rest assured that the first 48 hours will be spent creating a timely plan and a stable routine that works for you and your family. To help you feel more at ease, let’s talk about the steps you can expect to follow within the first 48 hours of hospice care.
Step 1: Qualify for Admittance
The hospice journey begins with approval from a qualified physician. This physician, usually a primary care doctor, will certify that your loved one meets the qualifications necessary for hospice care. Their admittance will be determined based on the qualifications list, filed paperwork, and the plan of care, or POC, that the doctor put together. Once they’re certified, you can contact a local hospice organization.
Step 2: Review the Insurance Benefits
Before choosing a hospice organization, you should understand what your loved one’s insurance plan covers. Contacting their provider before choosing a hospice program can help you avoid unexpected costs and make informed decisions about their care.
When you call the insurance provider, consider asking these questions:
- What hospice care services are covered under this plan?
- Are there any out-of-pocket costs I should prepare for?
- Are there restrictions on where my loved one can receive hospice care (home, facility, etc.)?
- Which hospice organizations are in-network?
- Is there a limit on how long hospice care is covered?
- How does payment work with the plan?
- Are medications, medical equipment, and supplies included in the coverage?
- Does this plan cover additional services like counseling or spiritual care?
Write down their answers to ensure you don’t miss anything. This information will help you choose the hospice organization that’s right for your loved one.
Step 3: Contact Your Chosen Hospice Organization
After you fully understand your loved one’s insurance benefits, your next step is reaching out to your chosen hospice organization. Your first call will be a conversation during which you’ll provide information, ask questions, and reach a mutual understanding of the situation. Your hospice coordinator will ask you questions about your loved one’s plan of care, daily routine, pain management, and medications.
Make sure you have the following information handy during your conversation with a hospice coordinator:
- Insurance details
- Any advance directives
- Their current medications and medical equipment
- HIPAA authorization preferences
While the initial call may feel like a big step, it will set up an open and constructive relationship between you and the hospice program. The more information your loved one’s hospice team has, the more personalized and supportive their care plan will be.
Step 4: Meet the Hospice Team
Once you’ve discussed your loved one’s needs with a hospice organization, they will put together a qualified team. Your family will have introductory visits with your hospice caretakers as needed. Team members will reach out over the course of a week, depending on which services are most urgently needed.
Your loved one’s plan of care will determine which service providers they may need. Their team may include:
- A hospice physician
- Nurses
- Medical social workers
- Hospice volunteers
- A counselor
- A spiritual advisor (if you are religious)
Each team member should be approachable, professional, and empathetic to your situation. If your loved one doesn’t feel comfortable receiving care from a particular caregiver, they may request a new one.
Your loved one’s health will be monitored, and their team will keep the plan of care on track. They will visit regularly, depending on your loved one’s health conditions and needs. Most importantly, the team is there to guide you, your loved one, and your family with professional service and compassionate support.
Step 5: Coordinate Equipment and Care Setup
Before the hospice team arrives, you should prepare your loved one’s home according to the team’s direction. Find an area in their home where they feel safe and comfortable. Remove any trip hazards (like rugs), move bulky furniture against the walls and out of the way, and add any personal touches that will make the space even more comfortable.
Their hospice team will then bring the necessary equipment and supplies to their residence. The medical equipment is based on your loved one’s needs, mobility, and symptoms. In addition to setting everything up, the hospice team will walk you through the equipment’s purpose, how to use it, and answer your questions.
Based on your loved one’s care plan, the hospice team may bring equipment like:
- A hospital bed for easier access and care
- Oxygen equipment for breathing support
- A bedside urinal for safety and quiet dignity
- A wheelchair or walker for mobility support
- An IV drip for medication or fluid delivery
Each of these items is chosen to improve your loved one’s comfort and safety. As they settle into their hospice routine, this equipment will ensure they receive the best care possible.
Result: A Supported Family and Routine
The first 48 hours of hospice care will set up a new routine for everyone, but the ultimate goal is a supported family and a stable routine. As you adjust, give yourself and your loved ones an extra measure of grace. Change is hard.
Also, lean on the hospice team to help with questions or concerns. And if your loved one or your family is having trouble adjusting, consider making an appointment with a hospice counselor or spiritual advisor.
While the first 48 hours of hospice care can feel overwhelming for everyone involved, this time is also the beginning of a chapter filled with meaningful support. The hospice team will be there to guide you, your loved one, and your family through this next stage of life. Hospice care can be an emotional transition, but it provides a strong foundation of professional support and care for both patients and their families.
For additional information about hospice care, check out these resources:
3 Ways Hospice Care Supports Your Family
Who Qualifies for Hospice Care?
Understanding the 7 Basic Hospice Services
6 Ways Hospice Care Can Improve Quality of Life
